Shane Terry Searching for a Cure for Fibrodysplasia Ossificans Progressiva (FOP)![]() ![]() |
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Shane is a five year old boy that was diagnosed with F.O.P in May of 2008. F.O.P. is a debilitating genetic disorder that turns tissue into bone. Without a cure Shane could become immobile. He has already had trauma to both shoulders, as a result bone growth has occurred which has limited the use of his arms and neck. ![]() ![]() ![]() ![]() ![]() |